No, it’s not Erectile Dysfunction, nor is it an Eating Disorder (just two of the incorrect health issues in which GPs have mistaken it for on meeting me).
The best place for you to learn about EDS is through the charity, Ehlers Danlos Support UK. https://www.ehlers-danlos.org/what-is-eds/
In short, it is a connective tissue disorder of which causes joint dislocations, skin problems, vein issues and organ prolapses amongst a myriad of other symptoms, complications and comorbidities (dysautonomia being a big pain in the ass). However, there are 14 types of the syndrome. There was 13 but now they’ve found another one. I have type 3 with a type 1 crossover. It’s genetic but some types can’t be screened for through genealogy. It flares. It hides. It’s shit.
There’s a saying that doctors use, “when you hear hoofbeats, think horses, not zebras”, which encourages medic professionals to look for the most simplest of diagnoses. The EDS community call themselves zebras as we are the anomaly to this rule. The zebra is our mascot, if you will.
We also use the ‘spoon theory’, like many other chronic illnesses, but EDS is enough of a brain fry for one day, I think…
In Search of Health 